To New Beginnings

Wow. That is what I have been saying to myself as May 1 approached and I anticipated the website going live.

 What a distance I have walked since that Friday morning in CA when I took Shawn to the ER.  That morning, at 47 years old, and making coffee for 30 of those years, he forgot how to make it.

 What was March 2012. I felt we were all alone. Fast forward to today when the GBM Facebook page has 3603 followers and the GBM Facebook Group has 1860 members. I was never alone, but without social media, I might have felt that way for the journey’s entirety.

 I wish that Shawn could see how awareness has grown. In 2012, we didn’t hear anything about it. He died fully confident that I could be a “game changer”. He continues to fuel me.

 It took 44 years and the death of “my person” to find out what my mission was. My reason for being on this earth.  

 I am humbled and honored to serve the brain cancer community.


4 thoughts on “To New Beginnings”

    1. Janet,

      Did you mean that he was diagnosed in April of 2015? Every single new diagnosis breaks my heart. I know how scared you must be of the unknown, but you are not alone. Many are on your journey and many of us have been there already. Please let us know if there is any way we can help. Kelli

  1. Hi Kelli,
    Thank you so much for what you are doing to raise awareness of GBM.
    My wife has been surviving well since being diagnosed in 2008 with stage IV breast cancer. It is because of her (her name is Erin) that I am writing to you. Today Erin is doing well. I worry though about the day when things may not be so good.
    Could you share 5 minutes of your time to visit with me about a clinical trial that is recruiting for rGBM ? My hope is that if the new therapy is effective against GBM, that it can be later approved for use against breast cancer.
    My phone is 360 632 1101.
    Thank you. Darin Cook

    1. Hello Darin,

      Thank you for the compliment, but truly, all my advocacy is a labor of love in honor of my late husband.
      You wife Erin is certainly a fighter! I am so happy to hear that she is a Survivor.
      I would be happy to talk with you further about the clinical trials. I work a full time job so my advocacy usually takes place in the evenings. I live in Texas so I can call you after 6 pm my time.
      I have always said that I want a cure for ALL cancer because I feel if they can cure one, they might can cure all of them!
      Give Erin a hug from me!


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