Adult Resources

  •  Accelerate Brain Cancer Cure
    • Accelerate Brain Cancer Cure has a singular focus – to hasten the discovery of a cure for brain cancer. Accelerate Brain Cancer Cure inspires new hope for a cure by using a results-driven business model to bring more treatments to patients, stimulate research & development and otherwise support the accelerated development of new therapies for brain cancer.
  • American Brain Tumor Association
  • Brain Hospice: Brain Tumor Hospice Care
    • Dianne Phillips created this site so that caregivers approaching this important new junction may recognize and understand end-stage events that are likely to happen, as well as find support in providing the best of loving care during this critical time. Sharing not only her own experiences with her father, but also those of literally hundreds of others who’ve been there as well.
  • Can’t Never Could
    • Can’t Never Could, Inc. is a non-profit corporation dedicated to helping individuals and groups who are facing adversity and personal battles.
  • Cancer.Net
    • Provides timely, comprehensive, oncologist-approved information from the American Society of Clinical Oncology (ASCO), with support from the Conquer Cancer Foundation. Cancer.Net brings the expertise and resources of ASCO to people living with cancer and those who care for and about them to help patients and families make informed health care decisions.
    • Provides free, confidential info & resources on cancer-related legal issues through their national hotline: 866-THE-CLRC.
    • This provides a comprehensive list of quality links on caregiving on the Internet. Also includes listings of other resources as well as an “Ask Dr. Caregiver” section.
    • This website is designed to provide the latest information on chemotherapy to patients and their families, caregivers, and friends, and serves as a supplementary tool to the healthcare professional. Chemocare is a program of the Scott Hamilton CARES initiative.
  • The Chris Elliot Fund
    • Provides Health Information Concierge for brain tumor patients, whether newly diagnosed or battling a brain tumor recurrence, with detailed information, resources and support via phone or email.
  • Cleaning For A Reason
    • A nonprofit organization partnering with maid services to offer free professional house cleanings to improve the lives of women undergoing treatment for any kind of cancer.
  • Dream Foundation
    • Grants final dreams from the heart for adults with life-limiting illnesses.
  • Family Caregiver’s Alliance
    • (415-434-3388)
    • The alliance supports and assists caregivers of brain-impaired adults through education, research, services and advocacy. The organization provides a clearinghouse of information and resources related to medical, social, public policy and caregiving issues related to brain impairments. Their website includes an online support group for friends and family members caring for an adult with cognitive disabilities.
  • Greg’s Mission
    • Provides one-on-one support for patients, families, and caregivers who are suffering from multiple forms of brain cancer.
  • Meningioma Mommas
    • Meningioma Mommas is currently funding a neurosurgeon’s study to examine the link between hormones and meningioma tumors.
  • Musella Foundation
    • The Musella Foundation For Brain Tumor Research is a 501(c)3 non-profit organization dedicated to improving the quality of life and survival times for brain tumor patients. We will attempt to achieve that goal by using computer technology to streamline the flow of information, organize the brain tumor community and raise money for brain tumor research.
  • National Brain Tumor Society
    • (1.800.934.CURE) 
    • NBTF is a nationwide non-profit organization serving people whose lives are affected by brain tumors. We are dedicated to promoting a cure for brain tumors, improving the quality of life and giving hope to the brain tumor community by funding meaningful research and providing patient resources, timely information and education.
  • National Family Caregivers Association
    • (1.800.896.3650) 
    • This group provides education and information services, support and validation for caregivers, public awareness and advocacy devoted to improving the quality of life of caregivers. Services for family caregivers include a quarterly newsletter, peer support network, educational materials, national resource referrals, and a bereavement program.
  • Open Hands Overflowing Hearts 
    • OHOH is a 501c3 working to inform people of the need and raise funds for pediatric cancer research in all areas where funding is lacking.
  • OncoLink, Website of the University of Pennsylvania Cancer Center
    • This site offers an unmoderated discussion list for parents, siblings, or friends of cancer patients; an e-mail discussion group about hospice-related issues; an extensive bibliography of issues related to caregiving; and an in-depth caregiver education course.
  • UCSF Medical Center
  • Voices Against Brain Cancer (VABC)
    • VABC’s mission is to find a cure for brain cancer and brain tumors by advancing scientific research, increasing awareness, creating a brain cancer and tumor community, and supporting patients, their families and caregivers afflicted with this devastating disease.


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